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Mzantsi Wakho 2014-2018

South Africa, 2014 - 2018
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Reference ID
zaf-cssr-mw-2014-2018-v1
Producer(s)
Professor Elona Toska, Professor Lucie Cluver
Metadata
DDI/XML JSON
Created on
Dec 04, 2025
Last modified
Dec 04, 2025
Page views
30
  • Identification
  • Version
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • survey_instrument
  • Data Collection
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    zaf-cssr-mw-2014-2018-v1
    Title

    Mzantsi Wakho 2014-2018
    Abbreviation or Acronym

    MW 2014-2018
    Country
    Name Country code
    South Africa zaf
    Study type

    Health Survey
    Abstract

    This dataset comes from Mzantsi Wakho (YouthPulse) — a longitudinal, mixed-methods community study of adolescents living with HIV in the Eastern Cape Province, South Africa, a region marked by structural vulnerability. The study aims to identify risk and resilience factors that influence antiretroviral therapy (ART) adherence; access to sexual and reproductive health (SRH) services; and other HIV-care outcomes among HIV-positive adolescents. Through linked quantitative and qualitative components, the project engages HIV-positive youths, their caregivers, healthcare providers, and social-service actors to better understand barriers and facilitators to effective HIV care and SRH service uptake. Data were collected over three survey waves (Wave 1: 2014–2015; Wave 2: 2016–2017; Wave 3: 2017–2018), combining self-reported questionnaires, clinic record abstraction, and facility-level service profiling — allowing analysis of temporal trends in resilience, treatment adherence, and service utilization. Although the baseline target was approximately 1,100 adolescents (with 1,059 identified as HIV-positive), the retention rates across follow-ups remained high (93–94%)
    Kind of Data

    Longitudinal Survey
    Unit of Analysis

    Individuals

    Version

    Version Description

    Version 1: Edited, anonymised data for shared under a CC-BY-NC attribution, non-commercial use license
    Version Date

    2025-03-13

    Scope

    Notes

    The data includes information about socio-demographics, health service access, and potential risk and resilience-promoting factors for ART adherence and SRH service uptake.

    Coverage

    Geographic Coverage

    The data was collected only in the Eastern Cape Province of South Africa
    Geographic Unit

    The lowest level of geographic aggregation in the data is District Municipality
    Universe

    All youth aged 10-19 years at baseline (born between 1995/01/01 - 2004/12/31)

    Producers and sponsors

    Primary investigators
    Name Affiliation
    Professor Elona Toska Centre for Social Science Research, UCT
    Professor Lucie Cluver Oxford University
    Funding Agency/Sponsor
    Name
    Claude Leon Foundation
    International AIDS Society
    South African National Department of Social Development
    Evidence for HIV Prevention in Southern Africa
    UKRI GCRF Accelerating Achievement for Africa's Adolescents (Accelerate) Hub
    European Research Council (ERC) under the European Union’s Horizon 2020 research and innovation programme
    John Fell Fund
    UNICEF Eastern and Southern Africa Office (UNICEF-ESARO)
    UNFPA South Africa
    Philip Leverhulme Trust
    Regional Inter-Agency Task Team for Children Affected by AIDS - Eastern and Southern Africa (RIATT-ESA)
    Oxford University Clarendon-Green Templeton College Scholarship
    Oak Foundation
    Nuffield Foundation
    Department of Health and Social Care (DHSC)
    Foreign Commonwealth and Development Office (FCDO)
    UK Medical Research Council (MRC)
    Janssen Pharmaceutica N.V.
    University of Oxford’s ESRC Impact Acceleration Account (IAA
    UK aid programme managed by Mott MacDonald

    Sampling

    Sampling Procedure

    Information on sampling for the study can be found in the Research Protocol document uploaded with the data.

    survey_instrument

    Questionnaires

    Data was collected with structured questionnaires which are available with the data files.

    Data Collection

    Dates of Data Collection
    Start End Cycle
    2014 2015 Wave 1
    2016 2017 Wave 2
    2017 2018 Wave 3
    Mode of data collection
    • Face-to-Face and Computer Assisted Personal and Telephone Interview
    Supervision

    Ethics approval for the data collection for the study was obtained from the Social Sciences and Humanities Inter-divisional Research Ethics Committee (IDREC) iof the University of Oxford.
    Data Collection Notes

    Data collection involved two primary sources: (1) a participant self-report questionnaire, completed with support from an interviewer to accommodate potentially low literacy levels, and (2) abstraction of clinic records. Clinic-level data, including individual patient records and information on services delivered by healthcare facilities, was gathered from hospitals and outpatient clinics. The study aimed to interview 600 HIV-positive adolescents in the first wave of survey data collection. However, a total of 1,060 participants were successfully interviewed.

    Data Access

    Access authority
    Name Affiliation URL Email
    DataFirst University of Cape Town support.data1st.org support@data1st.org
    Access conditions

    Access under a Creative Commons CC-BY-NC (Attribution, Non-Commercial use only) License
    Citation requirements

    Mzansi Wakho. 2025. Mzantsi Wakho Cohort Survey 2014-2018 [dataset]. Version 1. Place: Mzansi Wakho [producer], 2025. Cape Town: DataFirst [distributor], 2025. DOI: https://doi.org/10.25828/tzc0-sm18

    Contacts

    Contacts
    Name Affiliation Email URL
    DataFirst Support University of Cape Town support@data1st.org www.support.data1st.org

    Metadata production

    Producers
    Name Affiliation Role
    DataFirst University of Cape Town Metadata producer
    Date of Metadata Production

    2025-12-04

    Metadata version

    DDI Document version

    Version 1
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